Update

It is nearing midnight and I am exhausted. It was a long day of waiting and finally tonight we have a few answers. Our pediatrician saw Micah this morning and was just as upset about his worsening condition as we were. He was definitely even worse than yesterday, and he suggested neurology taking a look at him. The neurologists agreed that things weren't adding up and ordered a brain scan with his back scan on the MRI. Obviously we were terrified at what they might find but thankful to have more thorough testing done. He finally went back at 4 o'clock for the MRI and was there for 3 hours. Our families were with us, and we went out to dinner down the street. It felt nice to feel normal for a little while and get something good to eat. We are floating between moments of intense fear and sadness for our little boy and times of numbness where everything feels surreal. The doctors are on top of Micah's case, and our pediatrician is doing an amazing job managing Micah's care. We feel very blessed to be in such a great facility with such great doctors. Tonight the MRI showed nothing abnormal. We were relieved to have MS, tumors, etc. ruled out, but are baffled as to what is making our son crippled and lethargic. They went ahead with the spinal tap. Matt called me just now and told me his white count is elevated indicating possible encephalitis/meningitis. These are just guesses, and they are going to be continuing to get to the bottom of Micah's mystery disease. They have started an intravenous antibiotic which may or may not help. We don't know if this is viral or bacterial yet. Micah will be in the hospital for at least two more days. Thank you all so much for your prayers and kind words. I keep thinking he is just going to get up and start walking, and this will be all behind us soon. That is our prayer. I'm home again tonight to sleep with Margot and am headed back in the morning. I had some sweet time with Micah in his bed today while Margot napped. He held my hand and it felt good to snuggle my baby boy. Micah and Matt played some cards and we all enjoyed a little of the golf tournament while in and out of sleep. Hopefully tomorrow will be even more restful as they have moved us to a real room and we are out of the ER.

*Memorable moment: We were having a hard time waking Micah in the recovery room after the MRI. He wouldn't open his eyes for anything-not even a coke icee. I had been wearing his watch for him during the test and I said "Micah, look I have your watch and am going to put it back on you." He immediately cracked his little eyelids to check out what time it was! For those of you that know Micah-this is so him and hilarious to see come out in this situation. Matt and I had a good laugh and agreed we would never forget the boy who wouldn't wake up for anything but a glance at his watch!