Feeding Tube

So we are all glad that Micah has been given a feeding tube. He was a little upset at first, but is fine now. We have to wait on the dietician to start any nourishment, but we all feel food will do him good. He was given the Benydryl last night which made him very lethargic again. Today, when I got here, I noticed he can't speak at all anymore. His jaw is also clinched making eating now impssible. It is hard to see those changes, and we are all praying that tomorrow will show some improvement. He will have ten doses total of the IV steroid and he is now taking dose 2.

Matt and I are wearing down. They have lifted any precautions about Micah being infectious so we would love visitors. Seeing familiar faces will do us all good. We are going to bring Owen up this evening and everyone thinks this will be great for both of them.

A quick word about Micah's condition. First, this is very rare. They see it here at the hospital occasionally, but our pediatrician has only seen it once before. Some people have called the doctor's office making sure that their children are safe. Please know that this rarely ever happens. Micah did have some colds before this, but this is Micah's body going haywire post infection. They are trying to find out what virus/bacteria he had-but he is testing negative for all of them meaning they were no longer infecting his body even when he started with these symptoms.