Today

Today, my child walked. Even though yesterday Matt and I said it would be a long time before he would do it, he shuffled himself to the potty and even made a "pee pee." He was also awake almost the whole day. I took my longest break last night into this morning and when I got back to the hospital, I was encouraged. It's funny because after being there a couple of hours I was discouraged again. He seems to be able to talk less and less even though I can tell he has more and more to say. If only he could communicate with us, I feel like this would be tons easier on him. He seems to be able to focus on only one thing at a time as it is extremely difficult to move his body. We are hoping that as his physical movements become easier that he will begin talking a little more.

Today, Micah took his last dose of IV steroid. We are anxious to see how he does now that he doesn't get pumped full of IV Benydryl twice a day. Also, high doses of steroids have lots of side effects. There is no way to know how much the drugs are affecting him at this point so we are curious how tomorrow will be. He will continue on oral steroids for 4-6 weeks.

Today, Micah took bites of food for every meal. It still didn't amount to enough to lose the feeding tube, but we are getting closer.

Today we were also almost guaranteed a recommendation to put Micah in a rehabilitation hospital-the closest one for children is in Atlanta. We now have to make lots of decisions regarding work, finances, splitting up or sticking together. These are things we just don't have a lot of brain power left to do. Please pray for us that we would be wise. We have a case worker who will help us sort through all the insurance stuff on Monday. We don't know how soon we will be leaving but are thinking as soon as Tuesday, but possibly not till later in the week. We will keep you all updated as decisions are made and things get rolling. Right now, I must abruptly sign off due to a prematurely waking baby :) She actually got in bed by 8 and doesn't know what to think about missing that late evening feeding. Be back tomorrow!